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@Susan Woods , @Deb Gordon , @Kate Lorig , ​​​​​​ @Janice McCallum , @Helene Clayton-Jeter, OD , Thank you for an excellent membership survey. The instrument was well designed, and I especially appreciate the detailed reporting of the member comments.  ...

Reading Danielle Ofri's new book, *When We Do Harm*. Just finished the chapter really highlighting the pluses and minuses of EHRs. It occurs to me that the deficits inherent (apparently) in the use of EHRs could be seriously mitigated by an informed and ...

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We hope you can join us on Tuesday, August 11 for HealthSparq's first-ever #WTFix Virtual Patient Panel! We'll be joined by a diverse group of panelists who will give honest feedback based on their experiences with health plans, health care providers, ...

FWIW, I find the conversations with and among patients far more interesting and useful than the conversations among professionals. Peter

I know a little bit about being a doctor and a little bit about AI. I have no idea how any patient is going to draw a line or tell the difference between the two in the near future. The analogy about your pilot and their instruments makes my point. ...

Geri Thank you for sharing this. I had received emails about the conference though had not acted on registering until I read this post. Thank you for the reminder! Sincerely ------------------------------ Janice Tufte Patient Partner @Hassanah2017 ...

Thank you @Beth Barnett ​ The paper you so kindly critiqued actually took years to finish. We we felt now was the right time to publish this. It is pretty dense in content that could be a challenge to some. Hopefully it might catalyze some organizations ...

Hi Jay, Very excited that you want to use the manifesto in a classroom setting! As you may know the manifesto was co-created at our fall 2018 conference so has the input of many people. Burt and I are happy to help you out in any way we can. Best, Judy ...

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Hello SPM - does anyone know what the process is to appeal an OCR decision? Are there OCR judges or other administrative body to hear appeals?

Checking the Compass of Participatory Medicine To paraphrase Abraham Lincoln, "A compass will point you to true north, but it doesn't show you the swamps. If you get bogged down, what's the use of knowing the direction?" When on a journey, it's a good ...

While reading Head First, The Biology of Hope (1989), by Norman Cousins, I came to the quote inserted below. Intriguing to me. Cousins backs his statement with lots of anecdotal evidence, which I personally find convincing. I wonder if SPM members can ...

Hi Susan!! It is so fun to meet another OT on here!! I will connect with Burt, then circle back to you with what I learn! I think the manifesto could be such an incredible tool for kicking off OT sessions! ------------------------------ Sarah Lyon OT ...

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Very good article! Brenda

Hi everyone,  The deadline for the patient scholarships is tomorrow. This will be a virtual conference.  From the website:  The AcademyHealth Annual Research Meeting (ARM) supports a healthy exchange of big ideas from a wide variety of voices. This ...

FYI - the next #PATH Patient Advocates Transforming Healthcare TuesdayTableTalk is tomorrow:  6/23 from 2-230pm EST. This wee:The Great Reopening- How Patients/Caregivers Feel. Join Hala Durrah , Shari Berman & Charisse (Nikki) Montgomery, ...

I moderate a group on FB for people with medical PTSD, like myself. (We get about 1 new person per week.) One of our members is having some serious trouble finding a doctor who will work with her on a urological issue, so I told her that, with her permission, ...

I had to chuckle yesterday.  Went for a routine test. Technologist identified herself as a student and asked me if it would be alright if she got some pictures first and then the actual technologist would be in. Of course i said yes. Low-risk setting. ...

@Victoria Ferro I can understand your frustration. I should point out that the resistance of the healthcare system to change, particularly in response to outside forces, is legendary. For this reason when we founded the SPM we wanted to entrain the voices ...

This is a great week, it seems, for Members publishing their papers! In addition to Ken Master's publication --  Kudos to  @Deb Gordon and her co-authors for a new paper today in Journal of Participatory Medicine/JMIR Health Care Consumer Shopping ...

Hi All You might be interested in our recent paper (Open Access) entitled "Surgical patients' use of, and attitudes towards, the internet for e-patient activities in Germany and Oman" published the Annals of Medicine and Surgery and available at: ...

One of our corporate partners, the American College of Radiology , is doing work to understand the crucial step of informing patients of the results of radiologic testing, a topic that likely resonates with many of you. Please support this important ...

Ah, thanks, Peter. Good article that makes some good points. I like it. For what it’s worth, Alexander, the whole “trauma-informed care” thing sounds great and I’m very, very pleased to see physicians becoming more attuned to this issue of taking ...

Hi,  I am a member of the Texas Association for Nurse Leaders and they just implemented discussion forums. I asked about what platform they are using and received this reply:  Our forums are a feature of the Association Management Software we use for ...

Thank you for the link. While it is possible to get some insight by listening, the lack of access to the pre-reads and to the slides and other documents discussed and presented is pretty frustrating. Would it be possible for the Board to discuss/revise ...

Thank you Brenda I appreciate your reflective thoughts and words of encouragement to all of us. Abreaction: good word.  As I write I have helicopters whirring overhead, the 6th day now, people are worried and are standing up for justice that is a long ...

We didn't narrow it down to WordPress. We looked at Vanilla, phpBB, Discourse, MyBB, SMF, Joomla, Drupal, and others. ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired ...

SPM member  @Greg Merritt  ​is helping to kick off the 1st PATH Table Talk this Tuesday. Check it out This week's topic, PFE 3.0- The Way Forward. A candid and thought provoking conversation about Patient Family Engagement in the midst of COVID-19 and ...

Dave @Dave deBronkart I can give you an example of the role patients actually play in drug development. In the 1970s, the Candlelighters Childhood Cancer Foundation (CCCF) was formed by parents who had children with Leukemia, and at that time all children ...

On Tuesday, May 27th I'll be co-hosting the Healthcare Leadership Tweetchat about educating, communicating with, and supporting patients between in-person or telemedicine consults along with SPM member @Eran Kabakov Check out the short blog:  http:// ...

The opening pages of this free-online article: http://pubmed.ncbi.nlm.nih.gov/27418473/?from_term=%28%22current+procedural+terminology%22%5BAll+Fields%5D%29+AND+%28%22american+medical+association%22%5BAll+Fields%5D%29&from_sort=&from_pos=2 give ...

Based on Maine results, this site is very incomplete. ------------------------------ Every good deed is worth doing. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ME 207 576-0716 ...

Catherine, Have you spoken with @Gregory Makoul on this important subject? ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) http://www.linkedin.com/in/johnhoben hoben.john@gmail.com +1 585 993 8265 ...

DANG me - I haven't been paying attention and missed this.  Was it recorded, and/or can you summarize what happened, @Brian Mack ?  Sorry!​ ------------------------------ Dave deBronkart e-Patient Dave LLC SPM co-founder and past co-chair Former SPM ...

Excellent, Greg. I shared with over 1,000 colleagues through one group yesterday and plan to share with several thousand more through multiple channels by COBD Friday. -- ________________________________________________________________ John Hoben ...

When I read the new president's nice introductory letter, the mention of "clinical and patient perspective" prompted a question. Those are two perspectives, but I wonder if the public policy perspective should join them as a pillar of the society? I ...

Here is a patient-led research report on "... the experiences of patients suffering from COVID-19 with prolonged symptoms using a data driven approach. The survey content and research analysis are "patient-centric," conducted through participatory type ...

I believe it's CMS that gets to set definitions in this situation the magic phrase appears to be "diagnostic test" which you can see defined (very generically) here: http://www.cms.gov/Regulations-and-Guidance/Guidance/Manuals/Downloads/bp102c15.pdf ...